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E that drew the awestruck hospital staff to her sideA journalist and folklore scholar accustomed to processing the world through other people's stories Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide What she finds on her journey vacillates between beauty and darkness She discovers that Noah's birth story is believed to be the first record of a baby born with albinism and that the Kuna people in Panama revere members of their society with albinism seeing them as defenders of the moon in the night sky She attends a gathering of people with albinism in St Louis and interviews geneticists social scientists novelists and folklorists in Canada England and the US But when she uncovers information about gr. In December 2010 the author s first child Sadie was born with white hair It took weeks to confirm that Sadie had albinism a genetic condition associated with extreme light sensitivity and poor eyesight A Canadian folklorist Uruhart is well placed to trace the legends that have arisen about albinos through time and across the world ranging from the Dead Sea Scroll story of Noah being born with blinding white skin and hair to the enduring superstition that accounts for African albinos being maimed or killed to use their body parts in folk medicine She attends a NOAH America s National Organization for Albinism and Hypopigmentation conference discovers potential evidence of a family history of albinism and even makes a pilgrimage to Tanzania to meet some victims It s all written up in as engaging present tense narrative of coming to terms with disability to start with Uruhart is annoyed at people reassuring her it could be worse but by the end she s ever so slightly disappointed to learn that her second child a boy will not be an albino like his sisterEmily Uruhart is the daughter of novelist Jane Uruhart I was delighted to win a copy in a Goodreads giveaway

Read Î PDF, DOC, TXT or eBook Ë Emily Urquhart

Beyond the Pale

Uesome attacks on people with albinism in Tanzania rooted in witchcraft she feels compelled to travel to East Africa her sun shy toddler in tow in an effort to understand these human rights violations Upon her return to Canada she discovers a family photograph from the past that might illuminate her daughter’s present While navigating new territory as a first time parent of a child with a disability Emily embarks on a three year journey across North America and Africa to discover how we explain human differences not through scientific facts or statistics but through a system of cultural beliefs Part parenting memoir part cultural critiue and part travelogue Beyond the Pale as the title suggests takes the reader into dark and unknown territory in the search for enlightenment. Read this review and on my blogI feel like this year is the happiest I ve felt with my reading habits for the longest time When you step into book blogging it feels as though you must read what everyone else is reading not because anyone else tells you that but because naturally you want to join in when other bloggers are really excited about a book they ve been reading I really tried but I don t read primarily YA so a lot of the books that are very popular in the book blogging community tend to pass me by For a while that bugged me and now it doesn t because all that matters is that I enjoy blogging and I enjoy readingThis year I ve really gotten into non fiction For a while I was convinced non fiction just wasn t my thing When I was younger I was interested in stories in fiction I wasn t interested in reading a memoir As I got older most of the non fiction I read I encountered at university and when you associate non fiction with essay writing it can be hard to seek out non fiction purely for enjoyment s sake Over the past year or so however I ve really begun to enjoy non fiction I love non fiction centred around history and historical figures I m a huge history nerd but I ve also enjoyed reading some literary criticism and memoirs and recently I read and enjoyed Beyond the PaleI had no idea whatsoever that this book existed until I saw Jen Campbell mention it on her YouTube channel and it sounded fascinating I knew very little about albinism but I had encountered it a little during my MA while I was researching witchcraft and the idea of a folklorist exploring the beliefs surrounding albinism and looking into her own family history sounded right up my streetEmily Uruhart s writing style is very readable When she s discussing the early stages of her daughter s diagnosis and the different types of albinism there are it could have been easy for me to get lost I m not scientifically minded at all but I was never confused nor should I have been This book isn t a science book it s a memoir and a travel book and criticism all rolled into one and while albinism is the focus Emily pays so much attention to the people with albinism than the condition itself Everyone she meets is treated with such respect and her daughter Sadie is just adorableThere s a real spectrum of beliefs in this book from the biblical suggestion that Noah had albinism and therefore the condition is associated with being the child of an angel in Christian theology to the heartbreaking realities in Tanzania in which people with albinism literally live in fear of their lives Some of the stories may be a little hard to read but they re worth reading it s incredibly important that we don t remain ignorant to some of the atrocities that people with albinism are forced to face on a daily basisI really enjoyed this book It satisfied the craving I ve had for non fiction all year and once again reminded me to continue to broaden my reading habits The only reason I gave it four stars rather than five was because I was hoping for a little along the lines of folklore after a while it seemed to disappear from the narrative completely other than the times in which Emily reminded us she s a folklorist but I still really enjoyed reading about her trip to Tanzania and her research into her family historySuper interesting read I highly recommend it

Emily Urquhart Ë 4 Summary

The story begins on St Stephen's Day in St John's Newfoundland when the author gives birth to a baby girl named Sadie Jane who has a shock of snow white hair News of the child's icy locks travels across the hospital and physicians and nurses from all wards visit the unusually beautiful newborn as she lies sleeping in her plastic bassinet The maternity floor janitor however feels something is amiss Her eyes wide incredulous and panicky the janitor asks Is she an albino The idea is Beyond the Epubimmediately dismissed but after three months of medical testing Sadie is diagnosed with albinism a rare genetic condition where pigment fails to form in the skin hair and eyes She is visually impaired and faces a lifetime avoiding the sun She will always have the otherworldly appearanc. This has a massive personal connection for me Will chat about it in my August wrap up A wonderful read


10 thoughts on “Beyond the Pale

  1. says:

    I am fairly conflicted about this book and I have mostly myself to blame for that I did not really read the description before reuesting it and going mainly off the title of the book I expected the folklore part of this book to play a bigger role And I would have loved that book the one I imagined in my head I mean I am sure of it Using something as personal as the birth of one's child with albinism as a stepping stone to discuss larger the

  2. says:

    This has a massive personal connection for me Will chat about it in my August wrap up A wonderful read

  3. says:

    I'm giving this book a 35 rating which seems a little harsh in my head but I think it makes sense This is uite a

  4. says:

    In December 2010 the author’s first child Sadie was born with white hair It took weeks to confirm that Sadie had albini

  5. says:

    A wonderful read exploring the many cultural beliefs and understandings surrounding albinism This is a non fiction book focusing on a subject in which Emily Uruhart has poured her heart and soul Having given birth to her daughter Sadie Emily uickly discovered there was something that set her daughter apart from the rest

  6. says:

    I have been dithering on posting these notes I read books and then I say what I think about them The notes are m

  7. says:

    Given that I am Canadian it is ironic that I learned about this extremely well written non fiction Canadian book from the very British Jen Campbell author poet and Booktuber extraordinaire Thank you JenUruhart's moving and informative book recounts her adjustment after her first child a daughter is born with albinism The book is part memoir p

  8. says:

    Read this review and on my blogI feel like this year is the happiest I've felt with my reading habits for the longest time When you step into book blogging it feels as though you must read what everyone else is reading not because anyone else tells you that but because naturally you want to join in when other

  9. says:

    Albinism is a rare genetic condition where pigment fails to form in a person's skin hair and eyes Those with albinism suffer from poor vision and sensitivity to the sun often developing skin cancer When Emily Uruhart gave birth to a daughter with albinism in 2010 her life took an unexpected turn Living in Canada Uruhart set out determined to learn everything she could about the condition and the implications for her d

  10. says:

    Such an interesting book I'm glad I finally picked it up as I learned so much about albinism and how it affects people around the world I loved how Uruhart tied her research into folklore it really does show how fiction and